Transforming Medicaid:
A Blueprint for Equitable Care
Medicaid serves over 70 million low-income Americans, yet its promise of healthcare access is constrained by fragmented bureaucracy, strained budgets, provider shortages, and political headwinds. In this book, Dr. Sanjay Basu MD PhD, an epidemiologist and primary care provider, confronts the paradoxes underlying barriers to equitable, high-value care for Medicaid recipients. By tracing Medicaid's evolution and spotlighting cracks missed by checkbox reforms, he presents a blueprint for long-term solutions. From addressing social determinants of health more holistically to integrating behavioral healthcare to preventing maternal mortality, the book's chapters chart specific evidence-based programs to improve Medicaid and achieve the goals of access, quality, and equity across one of the largest safety net programs in the United States.
Part 1: Introduction to Medicaid
01 Weaving a Safety Net: Medicaid's Origins and Evolution
In the early 1960s, America found itself at a crossroads, grappling with financing a healthcare system that was buckling under the weight of its own inadequacies. The corridors of power echoed with the footsteps of policymakers, their brows furrowed as they sought to navigate the labyrinthine complexities of a funding system that had long since outgrown its original design. The nation’s most vulnerable populations, the elderly and the impoverished, found themselves adrift in uncertainty, their access to care limited by a patchwork of disparate programs and initiatives that promised much but delivered little in terms of covering healthcare costs. Hospitals, once bastions of healing and hope, had become overcrowded and understaffed, unable to find ways to finance the care being ordered by physicians. Doctors, worn thin by relentless demands, struggled to provide care in the face of mounting obstacles to fund care services across an increasingly needy population. And all the while, the cost of medical treatment continued to rise.
At the heart of the ongoing troubles in American healthcare finance was a philosophical question: What role should the government play in ensuring access to healthcare? For decades, the answer had been clear: none at all. The American Medical Association (AMA), a powerful lobbying group representing doctors, had fought tooth and nail against any attempt to introduce a national health insurance program. They warned that government involvement would lead to “socialized medicine,” destroying the sacred doctor-patient relationship and undermining the quality of care.
But times were changing. A new generation of Democrats, led by President John F. Kennedy, was determined to take on the challenge of healthcare reform. They believed that access to medical care was a fundamental right, not a privilege reserved for the wealthy. And they were willing to fight for it, even in the face of fierce opposition from the medical establishment.
The battle lines were drawn in 1957 when Congressman Aime Forand introduced a bill that would have provided hospital insurance for the elderly through the Social Security program. The AMA immediately launched a massive campaign to defeat the bill, warning that it was spearheaded by “followers of the Moscow party line” and would lead to the destruction of the American way of life. They even hired a young actor named Ronald Reagan to record a dramatic vinyl record warning against the dangers of government-run healthcare.
Despite the AMA’s best efforts, the idea of expanded government insurance refused to die. In 1960, John F. Kennedy made it a centerpiece of his presidential campaign, promising to provide healthcare for the elderly and the poor. When he was elected, he immediately set to work, directing his staff to draft a comprehensive healthcare bill that would provide hospital insurance for the elderly and medical assistance for the poor.
But Kennedy faced a formidable opponent in the form of Wilbur Mills, the powerful chairman of the House Ways and Means Committee. Mills, a conservative Democrat from Arkansas, was a master of the legislative process, and was determined to block any attempt to expand the role of the federal government in healthcare. He believed that the cost of government-administered healthcare insurance would be prohibitive, and that it would lead to a massive expansion of the welfare state. For months, Kennedy and Mills battled behind the scenes, each trying to outmaneuver the other. Kennedy used every tool at his disposal, from public rallies to private arm-twisting, to try to win over reluctant members of Congress. But Mills proved to be a consistent challenger, using his mastery of parliamentary procedure to block the bill at every turn.
The stalemate might have continued indefinitely, had it not been fora tragic turn of events. On November 22, 1963, President Kennedy was assassinated in Dallas, Texas. The nation was plunged into mourning, and the future of healthcare reform seemed uncertain.
Kennedy’s successor, Lyndon B. Johnson, was not about to let the dream of a government healthcare program die. Johnson, a master politician with a deep understanding of the legislative process, immediately set to work on a new strategy. He knew that he would need to win over Wilbur Mills if he was going to get government healthcare through Congress, and he was determined to do whatever it took to make that happen.
Johnson’s first move was to appoint Wilbur Cohen, a trusted advisor and expert on Social Security, to lead the charge on a government health insurance program. Cohen had been working on the issue for years, and he had a deep understanding of the political landscape. He knew that the key to winning over Mills was to address his concerns about cost and sustainability.
Cohen set to work drafting a new bill that would incorporate some of Mills’ ideas, including a voluntary program for physician services and an expansion of the existing Kerr-Mills program for the poor. The program also includes a provision that allows the government to pay for services provided by private insurance companies, a concession to the powerful insurance lobby.
Even with these changes, Mills remained skeptical. He worried that the cost of the program would spiral out of control, and that it would lead to a massive expansion of the federal bureaucracy. Johnson knew that he would need to do more to win him over.
And so, in a series of private meetings and phone calls, Johnson and Cohen worked to convince Mills that a government-administered healthcare insurance program was not only necessary, but fiscally responsible. They argued that by providing healthcare to the elderly and the poor, the program would actually save money in the long run by preventing costly hospitalizations and emergency room visits.
Slowly but surely, Mills began to come around. He recognized that the political winds were shifting, and that the public was demanding action on healthcare. He also saw an opportunity to put his own stamp on the legislation, shaping it in a way that would address his concerns about cost and sustainability.
The breakthrough came in March of 1965, when Mills announced that he would support a revised version of the government health insurance bill. The new bill, which Mills dubbed the “three-layer cake,”included hospital insurance for the elderly, a voluntary program for physician services, and an expansion of the Kerr-Mills program for the poor.
The bill quickly gained momentum, passing the House Ways and Means Committee by a vote of 17-8. The full House followed suit, approving the bill swiftly. The Senate, too, passed the bill overwhelmingly, and on July 30, 1965, President Johnson signed the Social Security Amendments of 1965 into law, creating Medicare and Medicaid.
The impact of the new programs was immediate and profound. Within a year, more than 19 million Americans had enrolled in Medicare, and millions more were receiving benefits through Medicaid. Hospitals and doctors, once wary of government involvement, quickly came to rely on the new programs as a reliable source of funding.
Yet the battle over healthcare was far from over. In the years that followed, Medicare and Medicaid would face numerous challenges, from rising costs to political attacks. Conservatives would continue to warn of the dangers of “socialized medicine,” while liberals would push for even greater government involvement in healthcare.
Through it all, however, Medicaid would remain a vital lifeline for millions of Americans. It would provide access to care for the elderly, the disabled, and the poor, ensuring that no one would be left behind in the quest for health and well-being.
Today, more than fifty years after its creation, Medicaid remains a central pillar of the American healthcare system. It has evolved and expanded over time, adapting to changing needs and circumstances.
As we look to the future of healthcare in America, we would do well to remember the lessons of Medicaid’s historical origins. The birth of Medicaid was a turning point in American history, a moment when we as a nation affirmed our commitment to the idea that healthcare is a fundamental human right. It is a moment that we must never forget, as we continue the struggle to build a healthcare system that works for all Americans, not just the privileged few.
The passage of Medicaid into law in 1965 was a landmark achievement, but it was only the beginning of a long and complex journey. In the years that followed, the program would face a series of challenges and transformations, as policymakers sought to adapt to changing circumstances and address emerging problems.
One of the first challenges was the rising cost of healthcare. As more and more Americans gained access to care through Medicaid, the demand for medical services began to skyrocket. At the same time, advances in medical technology and the development of new drugs and treatments were driving up the cost of care.
To address these issues, policymakers began to experiment with new payment models and cost-control measures. In the 1970s, Congress enacted a series of reforms aimed at reining in Medicare and Medicaid spending, including limiting the amount that doctors could charge for their services.
These efforts were only partially successful, and by the 1980s, the cost of healthcare was once again spiraling out of control. In response, Congress enacted a series of more sweeping reforms, particularly focused on Medicare payments covering the nation’s elderly, including the introduction of the prospective payment system for hospitals and the creation of the Physician Fee Schedule.
These reforms helped to slow the growth of healthcare spending in Medicare, but also had unintended consequences. Some doctors began to opt out of both Medicare and Medicaid programs altogether, citing low reimbursement rates and burdensome regulations. Others began to focus on providing more profitable services, such as elective surgeries, while neglecting less lucrative areas of care.
Meanwhile, Medicaid was facing unique challenges that were more complex than those of the smaller Medicare program that focused on the elderly. As a joint federal-state program, Medicaid was subject to a patchwork of different rules and regulations, depending on where a beneficiary lived. Some states provided more generous benefits and eligibility criteria, while others were much more restrictive.
This variability made it difficult for beneficiaries to access care, particularly if they moved from one state to another. It also created incentives for states to shift costs onto the federal government by enrolling more people in Medicaid, a phenomenon known as “Medicaid maximization.”
To address these issues, Congress enacted a series of reforms in the 1980s and 1990s aimed at standardizing Medicaid benefits and eligibility criteria. These included the creation of the Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) program, which required states to provide specific health care services to children, and the enactment of the Medicaid Drug Rebate Program, which helped to lower the cost of prescription drugs.
Even as these reforms were being implemented, a new challenge was emerging: the continuing rise of chronic diseases among the American populace. As more and more Americans developed obesity, heart disease and diabetes, the demand for services grew exponentially. At the same time, the number of pharmaceuticals required to manage the conditions began to burgeon, raising concerns about the longterm financial sustainability of the program.
As Medicaid entered the 21st century, it faced an explosion of these challenges and opportunities. The Patient Protection and Affordable Care Act (ACA), enacted in 2010, brought sweeping changes to the healthcare system, including a significant expansion of Medicaid eligibility and the creation of new insurance marketplaces for individuals and small businesses.
The ACA also introduced a series of reforms aimed at improving the quality and efficiency of care, such as the expansion of value-based payment models that paid more for the quality of care than for each test or procedure conducted. These reforms sought to incentivize providers to deliver high-quality, coordinated care, rather than simply providing a high volume of services.
The ACA also faced significant political opposition, particularly from conservatives who viewed it as a government overreach. Some states, led by Republican governors and legislatures, refused to expand Medicaid eligibility, leaving millions of low-income Americans without access to coverage.
At the same time, the rising cost of healthcare continued to pose a major challenge for Medicaid. Despite the ACA’s efforts to control costs, healthcare spending continued to grow faster than the overall economy, putting pressure on federal and state budgets. The opioid epidemic expanded from prescription pills to heroin to fentanyl, and the burden of deaths among disproportionately low-income communities also highlighted the need for Medicaid to provide mental health and substance use coverage–at a time when many psychiatrists and other behavioral health specialists were foregoing insurance altogether to treat wealthier clients who could pay in cash.
In recent years, policymakers have begun to explore new approaches to addressing these challenges, such as the development of universal healthcare proposals that would extend coverage to all Americans, regardless of age or income. These proposals have sparked intense debate, with supporters arguing that they would improve access to care and reduce costs, while opponents warn of the potential for increased government control and reduced innovation.
As the debate over the future of healthcare continues, one thing is clear: Medicaid will continue to play a central role in the American healthcare system for years to come. The program has transformed the lives of millions of Americans, providing access to care that would otherwise be out of reach. It has also helped to shape the broader health-care landscape, driving innovation and reform in both the public and private sectors.
The story of Medicaid is far from over. As the population continues to age and healthcare costs continue to rise, policymakers will need to find new ways to ensure that the program will remain sustainable and effective in the years ahead. This will require a willingness to embrace new ideas and approaches, while also staying true to the core values and principles that have guided these programs from the beginning.
The story of Medicaid is not just a story of policy and politics, but also a story of vulnerability and lives at stake. Behind every statistic and every debate are individuals and families whose lives have been touched by Medicaid in profound ways.
Mary, a 52-year-old widow whose husband died in a tractor accident, is now living on a failing farm income in rural Kentucky. She had worked on the farm her entire life, raising two children on her own after her husband passed away. As she grew older, she began to experience a series of health problems, including diabetes, high blood pressure, and osteoarthritis of the knees.
Without Medicaid, Mary would have been unable to afford the medical care she needed to manage her conditions. She would have had to choose between paying for her medications and putting food on the table. Thanks to Medicaid, Mary was able to access the care she needed, including regular check-ups with her doctor and prescription drugs to control her symptoms.
Mary’s story is just one of millions of similar stories across the country. For many Americans, Medicaid is not just an abstract program, but a lifeline that enables them to live with some degree of dignity and independence.
Medicaid is not without its challenges, and there is much work still to be done to ensure that they continue to meet the needs of the low-income Americans who depend on it. One of the biggest challenges is the persistent disparities in health outcomes that exist along racial and socioeconomic lines.
Comprehensive research has consistently shown that Black and lower-income Americans are more likely to experience chronic health conditions and have shorter life expectancies than their white counterparts. They are also more likely to face barriers to accessing care, such as lack of transportation, language barriers, and discrimination.To address these disparities, policymakers and healthcare providers must work to build a more equitable and inclusive healthcare system. This will require a multifaceted approach that addresses the social determinants of health, such as poverty, education, and housing, as well as the structural barriers that prevent some Americans from accessing care.
One promising approach is the continued expansion of community health centers, which provide primary care services (and, sometimes, mental health and dental services) to underserved populations.These centers are typically located in low-income neighborhoods and staffed by healthcare providers who are trained to work with diverse populations.
Another approach is the expanded use of telemedicine, hospital-at-home programs, and virtual assistants, which enable patients to access care remotely or with electronic guidance using digital technologies. These technologies have the potential to improve access to care for Americans living in rural and underserved areas, as well as those with mobility or transportation challenges.
Even as we work to build a more equitable healthcare system, we must also address the long-term sustainability of Medicaid. As the population continues to age and healthcare costs continue to rise, these programs will face increasing financial pressure in the years ahead.To ensure that Medicaid remains viable for future generations, policymakers will need to make difficult choices about how to control costs and improve efficiency. This may involve reforms to the way that healthcare is delivered and paid for, such as the development of value-based payment models that incentivize providers to deliver high-quality, cost-effective care.
It may also involve efforts to address the underlying drivers of healthcare costs, such as the high price of prescription drugs and the overuse of unnecessary medical services. By tackling these issues head-on, we can help to ensure that Medicaid remains a vital part of the American healthcare system for years to come. Ultimately, the story of Medicaid is a story of progress and perseverance. From their humble beginnings as a safety net for the most vulnerable Americans, these programs have grown to become a central pillar of the healthcare system, providing access to care for millions of individuals and families.
The work is far from finished. As we look to the future, we must continue to build on the legacy of Medicaid, working to create a healthcare system that is more equitable, more accessible, and more sustainable for all Americans.
This will require a renewed commitment to the values and principles that have guided these programs from the beginning: a belief in the fundamental dignity and worth of every human being, and a recognition that access to healthcare is a basic human right.
It will also require a willingness to embrace change and innovation, to think creatively about how we can deliver care more effectively and efficiently, and to work collaboratively across sectors and disciplines to address the complex challenges facing our healthcare system.The story of Medicaid is also a story of the evolving role of government in American society. When the program was first created in 1965, it represented a significant expansion of the federal government’s involvement in the healthcare system, particularly for low-income Americans. At the time, many conservatives opposed the program, arguing that it was a step towards socialism and a threat to individual liberty.
Over time, however, Medicaid has become an accepted and essential part of the American social contract. It has helped to ensure that millions of low-income Americans, including children, pregnant women, and people with disabilities, have access to basic medical care. In doing so, it has helped to promote greater equality and social cohesion, and has become a source of pride for many Americans.
The role of government in healthcare, particularly concerning Medicaid, remains a topic of ongoing debate. However, evidence suggests that government investment in healthcare programs like Medicaid can have significant positive impacts on both health outcomes and the broader economy.
Economic studies have shown that government spending on Medicaid has a fiscal multiplier effect, meaning that each dollar spent on the program stimulates additional economic activity. Research from the Dallas Federal Reserve indicates that during economic downturns, such as the Great Recession, the fiscal multiplier for federal Medicaid assistance to states increased to 1.5, meaning that $1 of Medicaid spending resulted in $1.50 in subsequent economic activity due to increased employment and consumer spending. This suggests that government investment in Medicaid not only supports the health of low-income Americans but also provides a boost to the economy, particularly during challenging times.
My prior research with Oxford professor David Stuckler showed that investing in government-funded healthcare programs, including Medicaid, can lead to long-term economic benefits by improving population health and reducing healthcare costs. A healthier population is more productive and less prone to absenteeism, ultimately contributing to increased economic output and growth.
In contrast, the efficiency of private healthcare markets has been questioned by economists like Nobel Laureate Paul Krugman, who highlights the inherent market failures in the healthcare sector. Krugman argues that healthcare markets are fundamentally different from markets for other goods and services due to two key factors: uncertainty and complexity. The unpredictable nature of healthcare needs and the potential for extremely high costs necessitate the use of insurance, which limits consumer choice and creates incentives for insurers to deny claims and avoid covering high-risk individuals. Furthermore, the complexity of healthcare services and the inability of patients to make informed decisions based on experience or comparison shopping (because most have not been to medical school) lead to a reliance on doctors’ adherence to optimal treatment guidelines.
These factors contribute to information asymmetry between patients and providers, suboptimal resource allocation, and inefficiencies in the absence of government intervention. Information asymmetry occurs when providers have more knowledge about medical conditions, treatments, and costs than patients do. This imbalance can lead to patients making suboptimal choices and providers recommending unnecessary or overly expensive treatments. Suboptimal resource allocation refers to the inefficient distribution of resources based on an individual’s ability to pay rather than medical need or the potential for positive health outcomes. For example, a low-income patient with a serious condition may not be able to afford the most effective treatment, while a high-income patient with a minor condition can easily pay for an expensive, but unnecessary, procedure.
Inefficiencies arise when resources are used in a way that does not maximize output or minimize costs. In a fee-for-service system, providers may have an incentive to recommend more expensive treatments, even if they are not the most effective or appropriate. Additionally, lack of coordination among providers can lead to fragmented care and potential medical errors. For instance, a patient with a chronic condition may receive care from multiple specialists who do not communicate effectively, resulting in duplicate tests or conflicting treatment recommendations.
Government intervention, such as regulations, price controls, or the establishment of a single-payer system, can help mitigate these market failures by setting standards for care, aligning incentives, and ensuring a more equitable allocation of resources based on medical need rather than the ability to pay. While Krugman does not argue fora specific healthcare system, he emphasizes that successful systems worldwide vary in their approaches, and that there are no examples of successful healthcare systems based solely on free-market principles.
Given the evidence supporting the economic and health benefits of government investment in Medicaid, policymakers and healthcare leaders must work together to ensure the program’s effectiveness and sustainability. This may involve considering expansions of Medicaid eligibility to cover more low-income Americans, as well as implementing reforms to improve the efficiency and quality of care delivered through the program.
Ultimately, the role of Medicaid in shaping the future of healthcare in America cannot be overstated, particularly for vulnerable populations. By recognizing the positive impacts of government investment in healthcare and working to optimize the program, policymakers and healthcare leaders can promote both better health outcomes and economic growth.
One key challenge in addressing the health of Medicaid beneficiaries is the need to consider the social determinants of health (SDOH). While Medicaid has helped to improve access to medical care for low-income Americans, it has not always been able to address the underlying social and economic factors that contribute to poor health outcomes, such as poverty, lack of education, and inadequate housing and nutrition.
A striking example of how SDOH can impact health outcomes is illustrated by the work of University of California professor Hilary Seligman. Seligman noticed a troubling pattern among her patients with diabetes at the county hospital serving low-income individuals: emergency department visits for hypoglycemia (low blood sugar) were spiking during the fourth week of every month.
This pattern was not related to any biological factors associated with a monthly cycle. Upon investigation, Seligman discovered that many of her patients were recipients of the Supplemental NutritionAssistance Program (SNAP), commonly known as food stamps. SNAP benefits were distributed at the beginning of each month, and by the fourth week, many recipients had run out of money for food. However, they continued to take the same amount of insulin, which led to dangerously low blood sugar levels and subsequent emergency department visits.
To address this issue, Seligman and her colleagues implemented a food voucher program that provided additional assistance to patients during the latter part of the month. This intervention was unsurprisingly more cost-effective and less dangerous than treating hypoglycemia in the emergency department. By addressing the underlying social determinant of food insecurity, the program aimed to improve health outcomes and reduce healthcare costs.
This example highlights the importance of taking a holistic approach to healthcare, particularly for Medicaid beneficiaries who may face multiple social and economic challenges. To truly improve the health of all Americans, we must invest in upstream interventions that address SDOH, such as ensuring access to nutritious food, stable housing, and quality education. This will require greater collaboration between the healthcare sector and other sectors, as well as a willing-ness to prioritize prevention and health promotion alongside traditional medical treatment.
As a program devoted to the underserved, Medicaid will continue to struggle to achieve a goal of greater patient engagement and empowerment of patients. While Medicaid has helped to improve access to care, it has not always been successful in engaging patients as active participants in their own health and healthcare. Too often, Medicaid patients are treated as passive recipients of care, rather than as partners in their own health journey.
To address this challenge, we must work to create a more patient-centered healthcare system that empowers Medicaid beneficiaries to take control of their own health. This will require greater investment in patient education and self-management support, as well as the development of new technologies and care models that enable patients to more easily access and engage with their healthcare providers.
In addressing the question of patient decisions and involvement and control of their own journeys, we must continue to grapple with the ethical and moral dimensions of Medicaid policy. While Medicaid has helped to promote greater equality and social justice, it has also raised difficult questions about the allocation of scarce healthcare resources and the balance between individual liberty and collective responsibility.
As we look to the future of Medicaid, we must continue to engage in honest and open dialogue about these issues, and work to build a program that reflects our deepest values and aspirations as a society. This will require a willingness to confront difficult trade-offs and make hard choices, but it is essential if we are to create a healthcare system that truly serves the needs of all Americans, particularly those who are most vulnerable.
In the end, the story of Medicaid is a story of the ongoing struggle to build a more just and equitable society. It is a story of the power of government to make a positive difference in people’s lives, and of the importance of working together to address the complex challenges facing our healthcare system, particularly for low-income and vulnerable populations.
As we reflect on the first 50 years of this vital program, we can celebrate the progress that has been made, while also recognizing the work that remains to be done. We can recommit ourselves to the task of building a healthcare system that promotes health, equity, and social justice, and that ensures that all Americans, regardless of their income or circumstances, have access to the care they need to live full and healthy lives.
The story of Medicaid is still being written, and it is up to all of us to help shape the next chapter. By working together, we can build on the legacy of this program and create a healthcare system that truly reflects the best of who we are as a nation. It will not be easy, but it is a challenge we must embrace if we are to fulfill the promise of a more perfect union for all Americans, particularly those who are most in need.